THE LIBRARY
The Library
Everything I've made for people caring for someone with frontotemporal dementia — three books and a set of practical tools, written by a caregiver, for caregivers.
Three books — one road
How to take care of your loved one without losing yourself. Each book stands on its own; together they walk the whole road with you.
Getting to Know FTD
What the disease is, how it shows itself, how the diagnosis is made and what can help — in plain words, without medical jargon, without panic. It's also where you'll find my story.
AVAILABLE SOONYour Loved One
Caring for Your Loved One
Everyday life, practically: when behaviour changes, when the words go, when something is urgent — what you do, step by step.
AVAILABLE SOONYourself
Caring for Yourself
A whole book for you: the anger and the guilt, your own support network, and how you stay standing on this road.
AVAILABLE SOONSo you don't have to work it all out alone
Guides and tools that solve specific, everyday problems — made to be printed, filled in, and kept on the fridge.
The First 90 Days in 10 Steps
A guide and a checklist for the first, hardest stretch after the diagnosis — what to do, in what order, without drowning.
AVAILABLE SOONThe Letters Pack
Nine ready-to-use letters for doctors, services and employers — as a PDF and as editable Word files, so you can put in your own details.
AVAILABLE SOONLive-in Caregiver — the complete kit
How to find, interview and welcome a live-in caregiver: a finding guide, an interview questionnaire, and a welcome pack about your loved one.
AVAILABLE SOONCare Home — the complete kit
How to choose a care home and stay part of the care: a choosing guide, a visit questionnaire, and a hand-over pack about your loved one.
AVAILABLE SOONThe Medical File
The file that puts the medical side in order — templates and instructions so that everything is where it should be when you need it.
AVAILABLE SOONAnd more to follow…
Communication boards and more free material — the Library will keep growing. With your email, you'll hear first.
Until then — completely free
You don't have to wait for the Library to have help in your hands. These are free today:
- The Emergency Plan — four pages for the moment it's needed, no sign-up
- What is frontotemporal dementia? — for the first, hardest days after the diagnosis
- The first steps after a diagnosis — what to do now, practically
- Useful resources — helplines and organisations, every link checked
Shall I let you know?
Leave your email and I'll send one message when the Library opens. One message — not a flood.
Thank you. One email when the Library opens — and until then, the free resources are yours.
Unsubscribe with one click, any time. Your email is never shared.
— a fellow traveller on the same road